We are graced with an unusual board as our members have many decades on Active Surveillance, and also as three of us have transitioned elegantly to treatment, we also have much knowledge to offer in that area.
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Meetings 2023
ASPI AS ADVOCACY AWARD – 2023
Celebration of AS support pioneer Thrainn Thorvaldsson On October 28 we honored trailblazer and founding ASPI board member Thrainn Thorvaldsson with its first Patient Advocacy Award. We are celebrating Thrainn … Read More
Click Here For VideoApplied Research and Lifestyles and Low-Risk Prostate Cancer
Topics covered include; Role of Exercise for Deterring Prostate Cancer Progression/Death, Role of Diet for Men Living with Prostate Cancer/AS, Lifestyle Scores & Prostate Cancer Progression, Practical Advice on Diet for Men living with Prostate Cancer and cancer causes such as carcinogens, diet and mental health mindfulness for cancer.
Click Here For Video“AS 101” Program on Diet and Nutritional Lifestyle
Stacy Loeb, MD, a professor in the Department of Urology at NYU Grossman School of Medicine addresses diet and other lifestyle questions in the newest segment of AS 101, an ongoing “college-like” course to help these newly diagnosed patients.
Click Here For VideoA.S.P.I. 2023 MUSIC Award
ASPI (Active Surveillance Patients International) presented MUSIC (Michigan Urological Surgical Improvement Collaborative) with a special award, its first to a group.
Click Here For VideoA.S.P.I. 2023 Annual Chodak Award
Active Surveillance Patients International has presented the second annual Dr. Gerald Chodak Award to Dr. Peter Albertsen, of the University of Connecticut.
Click Here For VideoPissed Off: The Many Ways Urination Can Go Wrong
On July 1 we had Dr. Dean Elterman, an academic urologist at the University of Toronto, share his vast experience followed by a Q and A.
Click Here For VideoAS 101 Episode 6 “Imaging: The Leading Edge with Dr. Correa of Fox Chase”
Imaging: The Leading Edge with Dr. Correa of Fox Chase. Two of our board members have Dr. Correa as their urologist due to his gentle manner, and listening spirit. He also does microultrasound imaging which is achieving comparable results to MRIs.
Click Here For VideoAS 101 Episode 5 “Second Opinions and Biopsies”
Dr. Jonathan I. Epstein is a Professor of Pathology, Oncology and Urology at the Johns Hopkins School of Medicine. He also serves as the Director of Surgical Pathology at … Read More
Click Here For VideoAS 101 Episode 4 “Segments on Genetics and Genomics”
Do you know the difference between genetic and genomic testing and how it can impact your decisions on whether to follow Active Surveillance protocols vs. more aggressive surgical and radiation options?
Click Here For VideoActive Survelliance: Transitioning to treatment a candid conversation
You can read our own stories online, and we thought it would be compelling and informative to hear from those who have progressed. Many years ago, when many of … Read More
Click Here For VideoAS 101 Episode 3 “Active Surveillance”
The Whites have a follow-up visit with Dr. Klotz, who suggests Larry goes on Active Surveillance.
Click Here For VideoMeetings 2022
Moving AS to the next level: Can we help more patients?
AS leaders from Holland, the United Kingdom, and the state of Michigan share their “secret sauce” for reaching AS rates of near 90% and above
Click Here For VideoActive Surveillance 101 – Part 2 Full Meeting
AS 101 is a series of conversations between actual prostate cancer patients and their partners/spouses and leading experts.
Click Here For VideoActive Surveillance 101 – Part 1 Full Meeting
Like 101-level courses in colleges, AS 101 is aimed at teaching the basics. In this case, it’s the basics of active surveillance, close monitoring of low to favorable intermediate-risk prostate cancer.
Click Here For VideoHow and When Should I Do A Genetics Test?
Men, loved ones, and families can gain valuable facts from a cancer genetic test. While the use of genetics testing for cancers is still growing, the existing state of the art for prostate and related cancers is a powerful tool for identifying men and persons at risk. This 60 minute expert presentation will feature expert Geneticist Robert Finch, MS, a Certified Genetic Counselor, and Medical Oncologist Michael Glode’, MD.
Click Here For VideoEat To Beat Prostate Disease
Eat To Beat Prostate Disease – Foods That Promote Prostate Health and Fight Prostate Cancer, Best-Selling Author of Eat To Beat Disease Dr. William Li is our Zoom meeting guest speaker. Dr. Li’s TED talk, YouTube, and TikTok videos addressing the topic of Food As Medicine have had more than 13 million views.
Click Here For VideoDr. Steven Kaplan Special Presentation – It Ain’t Your Grandpa’s BPH
On June 1st, we had the pleasure of world renowned Dr. Steven Kaplan speaking to the AnCan Active Surveillance Prostate Cancer virtual support group, in collaboration with ASPI, titled “It Ain’t Your Grandpa’s BPH – An ‘Urgent’ Issue“.
Click Here For VideoYour Voice In The Future Of Active Surveillance
Taking a look at the Present and Future of Active Surveillance from the point of view of Patients and Researchers. Most importantly, understanding how Active Surveillance helps to ensure timely and quality clinical care for who need it urgently, by avoiding over diagnosis and treatment of low grade Prostate Cancer.
Click Here For VideoCompassionate Care: Reducing Anxiety
Importance of Compassionate Care support through Cancer Treatment Journey, from Diagnosis to Recovery. Analyzing the Best available Protocols from around the world. High-lighting the Urgent need for Awareness and Resources !!
Click Here For VideoThe Secret Life of the Prostate: The Good, The Bad and the Ugly
The Cultural Biography of Prostate Cancer and much more, from Ericka Johnson PHD, Professor of Gender and Society, Linkoping University, Sweden. It is often said “ To understand the Present context you should know the Past history .’’
A Wonderful presentation about many facets of Prostate Cancer Management, generally left unspoken !!
Anxious Surveillance: Coping with Anxiety and Active Surveillance
Anxiety among Active Surveillance Patients is generally, the Elephant in the Room, very Visible but normally un-acknowledged. Dr. Lara Bellandita, from Milan, Italy, is an highly accomplished Authority on this very crucial subject and explains how to deal with this Anxiety. In fact she tells us how to use it as a Window of Opportunity for a better Quality of Life during Active Surveillance.
Click Here For VideoMeetings 2021
Active Surveillance: A Peaceful, Easy, Feeling
Webinar with a difference ! Anxiety is a Poor Master. But when you are not alone it is easier to deal with it and have a Peaceful, Easy Feeling of being in Control of your Cancer Treatment Journey. Hear from real patients with Low Risk Prostate Cancer ( Gleason 6 ) all the way to Advanced Praostate Cancer ( Gleason 9 )
Click Here For VideoThe Sweet Smell of Success in Sweden-Why America needs to Listen?
Part 1 – Top Swedish Urologist Dr.Ola Bratt tells us what Sweden did right in advancing the case for Active Surveillance for Low Grade Prostate Cancer and succeded in drastically cutting down avoidable treatment and side effets for patients.
Click Here For VideoSweden’s Sweet Smell of Success-Q&A
Part 2 – Dr.Ola Bratt answers Questions on his excellent presentation
Sweet Smell of Success in Sweden- Why America needs to Listen
A Nutritional Chef Speaks Up – Chef Ken Dorr
Part 1 – Chef Ken Dorr shares stories and useful information about Healthy and Nutritional food that can be tasty and trendy, not only for Cancer patients but for everybody. A must see video !
Click Here For VideoA Nutritional Chef Speaks Up – Q & A
Part 2 – Chef Ken Dorr answers questions on his Presentation – A Nutritional Chef Speaks Up.
Click Here For VideoMoving Towards Safer Prostate Biopsies
The focus continues to be on Transperineal biopsy vs Transrectal biopcy. Presenting viewpoints by Patients and Urologists from across the world, Norway, United Kingdom and Australia, regarding Safety and Reliability aspects of the procedures.
Highlights how Patient Power can help improve
The leading edge of active surveillance for patients and urologists
Renowned US Urologist Dr.Eric Klein answers questions like “ Why I should opt for Active Surveillance?, What do I actually do while I am in Active Surveillance?, What tests? When? How often? and most impotantly What indicators will tell me when I should go off Active Surveillance and seek active treatment?
A must watch video for all Low and Medium risk Prostate Cancer patients !
Living and coping with prostate cancer on A.S.
Psycho-social impact of being diagnosed with Prostate Cancer and further, in making a decision to go for Active Surveillance is huge but was not understood or addressed in an effective manner till recently. Alan Hsu MD, Assiciate Professor Department of Psychiatry, UC San Diego Psychiatry, Moors Cancer Centre, reviews different methods of coping with anxety and also ways of discussing your decision of opting for Active Surveillance with your loved ones.
Click Here For VideoMicro-ultrasound imaging : A new view of the prostate
Imaging technolgy, which plays a critical part in the diagnosis and treatment of Prostate Cancer, is improving by leaps and bounbs and Micro Ultrasound is a game changer because of its sharper imaging, safety and cost advantages over convetional MRI and Biopsy options.
Dr. Gerald Andriole, Robert K. Royce Distinguished Professor, Washington University School of Medicine St.Louis, who has conducted a number of clinical researches related to screening for and preventing Prostate Cancer, talks to us about the advantages of Micro Ultrasound and why it is a crucial tool for future Prostate Cancer diagnosis and treatment.
Transperineal biopsies : What are they? Part 1 – Speakers
In recent times Transperineal Biopsies have emerged as a much safer procedure for Prostate Cancer detection and tracking. Compared to Transrectal Biopsies. European Urological Association has already recommended Transperineal Biopsy as the first choice where biopsy is needed and American Urological Association is expected to recommend the same in the near future.
Here A.S.P.I presents an expert panel to discuss why this change is necessary, the advantages and the differences between Transperineal and Transrectal Biopsis.
Transperineal biopsies : What are they? Part 2 – Speakers
The expert panel answers questions on our presentation “ Transperineal biopsies: What are they ? “
Click Here For VideoLearning from active surveillance patients experience
Most interesting and informative Town Hall meeting, sharing real life experiences of real patients about Challenges of A Biopsy, Story of various Genomic testing and Transition from Active Surveillance to Treatment.
As it is often said “ Stories from returning journymen are the most valuable for a traveller “
Dr. Chris Bangma, Chairman of Urology at Erasmus University and Academic Hospital in Rotterdam, Netherlands
In this presentation Dr.Chris Bangma, Chairman of Urology at Erasmus University and Academic Hospital in Rotterdam Netherlands, gives us an overview of Prostate Cancer management scenario in Netherlands.
He takes us though PSA testing, Imaging technologies, Genomic testing, How Active Surveillance work in Duch system and future of Liquid Biopsy and Artificial intelegence in Prostate Cancer Management.
Very informative and thought provoking presentation !
Learning from active surveillance patients experience
This webinar is the first of a series of presentations planned by Active Surveillane Patients International ( A.S.P.I ) in the coming months. In right spirit of our name, we are starting of the series with a truly International Panel from four different countries, Iceland, Italy, Canada and United States. Each panalist will talk briefly about their journey through Active Surveillance and will be followed by Question and Answer session.
Click Here For VideoA.S. 101
Episode 7: Program on Diet and Nutritional Lifestyle
Stacy Loeb, MD, a professor in the Department of Urology at NYU Grossman School of Medicine addresses diet and other lifestyle questions in the newest segment of AS 101, an ongoing “college-like” course to help these newly diagnosed patients.
Click Here For VideoEpisode 6. “Imaging: The Leading Edge with Dr. Correa of Fox Chase”
Interview with Dr. Correa.
Click Here For VideoGenetic Results
Genetic Results.
Larry and his wife Nancy discuss genetics from a patient point of view with Justin Lorentz, MSc, a certified genetic counselor and lead of Sunnybrook Health Science Centre’s Male Oncology Research and Education (MORE) Program, a registry for men with hereditary cancer.
Lorentz, who is an instructor at the University of Toronto, is also a consultant to the Promise study, which offers free DNA testing to U.S. men with prostate cancer.
Episode 5 “Second Opinions and Biopsies”
Dr. Jonathan I. Epstein is a Professor of Pathology, Oncology and Urology at the Johns Hopkins School of Medicine. He also serves as the Director of Surgical Pathology at … Read More
Click Here For VideoEpisode 4. “Counseling Before DNA Testing”
Counseling Before DNA Testing. Larry and his wife Nancy discuss genetics from a patient point of view with Justin Lorentz, MSc, a certified genetic counselor and lead of Sunnybrook Health Science Centre’s Male Oncology Research and Education (MORE) Program, a registry for men with hereditary cancer. Lorentz, who is an instructor at the University of Toronto, is also a consultant to the Promise study, which offers free DNA testing to U.S. men with prostate cancer.
Click Here For VideoEpisode 3. “Active Surveillance.”
The Whites have a follow-up visit with Dr. Klotz, who suggests Larry goes on Active Surveillance.
Click Here For VideoEpisode 2. “The Urologist.”
The Whites meet with urologist Laurence Klotz, “the father of active surveillance,” to discuss the diagnosis of prostate cancer.
Click Here For VideoEpisode 1. “Rising PSA.”
Patient Larry White and his wife Nancy visit family physician Steve Spann to learn about what Larry’s rising PSA night mean.
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